
Daniel climbing to the top. 
I wrote on Daniel's Caringbridge page but I also wanted to write on the blogg cause I plan on making this a family yearbook.
Daniel was running a low grade fever last night. It's a new cyst on his cute little bubble butt. The antibiotics just don't do it right now. We hope that if the dr. thinks that it has to be opened up that they will do it tomorrow when they do his bone marrow aspiration. Yes, that's right his last procedure for this road map of 3 years, 3 months, and 1 week will be over tomorrow.
I feel different then the way I thought I would. We are not having an end of the CHEMO party but a very small birthday party instead. (I don't know what tomorrow holds for Daniel, so we are playing it safe with the small party. He may not be up for much more.) Daniel and I will make cupcakes to take tomorrow and invite the staff to join us if they have time. Have you ever held your breath for a long time, and its time to let it out and relax, I don't know relax. I do know trust, and that is what I want to do. Put all my trust in the one who loves Daniel even more then me.
The road map for Daniel's CHEMO has been such a big part of our lives that it is going to take some adjusting on our part to get off that road and get on with living the new road that the Lord will show us. No more hospital trips, no more daily meds, no more cringing every time someone sneezes.... It will be interestingly good.
Randa will be home tonight and Lit David will be at the lake with us this weekend. It will be nice to be together.
I've had the date on our calendar for Daniel's last marrow appt. You will be in our prayers and we will be thinking about you all day. I can't imagine how the end of this part of the journey must feel. Wanting to sigh a big sigh of relief, but trying to get the signal from your brain to your body. It will come. Keep trusting.
ReplyDeleteWe love you guys. Hope we can see you all soon.
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